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BarbieGirl
#1 Posted : Thursday, October 25, 2012 7:12:43 PM Quote
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Joined: 12/3/2009
Posts: 1,110
Location: London
Hi everyone Smile Just a quick update on my next line of defence (!!??) or whatever it is lol!!
I had an MRI on my knee today, the pain has been much worse for the last three weeks and luckily I have managed to get seen within 10 days of my rheumy appointment.
No idea of the results, they said it will be 7 to 10 days.
I am seeing my specialist nurse on Tuesday 30th with regard to starting Rituximab.
I am having my flu and pneumonia (unsure about pneumonia one) jabs on Saturday 27th, in preparation for starting treatment. Laura (nurse) rang yesterday to say I also need a chest x ray, so when I went into radiology I asked if the order was put through, but they said there was nothing there. I was going to go up to the department to see her when my consultant appeared at the lift and told me to leave it til Tuesday and get it done then. So, something's happening somewhere!!
I'm not sure I really understand what will happen when the MRI test comes back. Is it looking for damage that would need a replacement??
Any ideas welcome. I think my problem is I don't ask when I'm in the department, as it always seems so rushed. My consultant is lovely, but is so busy all the time I don't want to be a bother. Confused
BARBARA
Jane.
#2 Posted : Thursday, October 25, 2012 10:59:51 PM Quote
Rank: Advanced Member


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Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Smile Hi Barbara
Sorry to read that you are having a bad time with your knee. I haven't had any mri scans, had xrays 3 weeks ago on hands, feet and right knee. Rheumy called a week later, was referred to orthp surgeon for right knee and going in 3 weeks regarding surgery.

The nurse said it could go three ways, both bones cut back to allow a gap to stop bone on bone rubbing, a partial knee replacement or full knee replacement.

My knee has got worse in a space of a few weeks, can't straighten it now pain is terrible. But I'm holding out for surgeons appointment. So glad I have a walking stick!!! It helps to keep me supported when my knee goes.

Once the appointment been, I will post you to say what has happened.

Have you tried doing a list of questions to take to your appointments?

ThumpUp thanku for mentioning flu jab, haven't had one yet Sad my fault for forgetting to book one.

Wish I could type more, have no energy. [Huh]
Good luck with your knee/mri scan results.
Jane
X
BarbieGirl
#3 Posted : Friday, October 26, 2012 8:26:04 PM Quote
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Joined: 12/3/2009
Posts: 1,110
Location: London
Thank you Jane

Please let me know how your appointment goes. I hope you are not in too much pain x
BARBARA
m_nanasbaum
#4 Posted : Saturday, October 27, 2012 10:22:42 AM Quote
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Joined: 12/5/2009
Posts: 90
Sorry to hear about your knees, both of you.

I am afraid, I am in the same boat. My right knee is nearly double the size and give me a lot of pain on and off. I am very weary about telling my doctor about it and am trying to contain the pain, taking co-codamol and wearing a knee support. Actually the knee support helps me quite a lot, somehow it stabilises the knee. Could'nt be without it.

The reason why I am so worried about an operation, is that I am looking after my husband more and more. He can't drive anylonger, as his eye sight is not good enough because of his diabetes, and it would be very difficult for him to look after me, while I am laid up after an op. Our neighbour had a knee operation last may, and he is still not able to drive and walks with a stick. He is 61 and was a very active person. I don't know, what the answer is going to be for me. Having lived with RA for 20 years, I have become very resigned to always living with pain somewhere in my body.

Have a nice week-end without too much pain. The sun is shining in London, but it is very cold.


Merete

sylviax
#5 Posted : Sunday, October 28, 2012 11:24:42 AM Quote
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Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Barbara - I had an MRI on my knee a couple of years ago. The main difference between this and the x-ray is that it shows more of the soft tissue. The x-ray will show what bone damage there is, but only the MRI will show the cartilage. Your knee is a very complex joint and there is cartilage on the end of each bone that provides a cushion when they rub together. There are also bits of cartilage on both sides of the joint. Any of this cartilage can get worn down by normal wear and tear (osteo-arthritis) or through injuries (like playing football or skiing). The joint is encased in stuff called the synovial capsule which holds the synovial fluid (like the oil in your car engine). When your knee is swollen and painful it might be because there is excess fluid or it might be because the synovial capsule is inflamed and "puffy". A simple x-ray can't see what is swollen or if the cartilage is damaged, but an MRI can show this detail.

As I understand it, RA causes inflammation of the synovium, and that's what causes the pain (and eventually leads to bone damage). Steroid jabs are very effective at controlling this inflammation and therefore reducing the swelling and pain, but obviously the consultant will need to understand what's happening inside your knee before deciding where to put the injection. There might be other complications but again the MRI gives an very clear picture.

In my case, the MRI showed that I had a torn cartilage due to an old skiing injury, so my left knee has always been weaker than my right knee, and that's where the RA attacked the worst - RA always seems to go for your weakest points!!! Anyway, I had a simple operation to trim the torn cartilage, and then later on I had a steroid jab in the knee, and that's pretty much fixed the problem. I still have to be careful as the knee is not as perfect as it once was and I've got a bit of osteo-arthritis too (well I'm 54!!), so for example I avoid kneeling down, and I don't run, and I use hiking poles for any long-distance walking, and I exercise to keep my leg muscles strong - but it doesn't have to rule my life. I keep aware of how stiff the joint is, and when the RA flares a bit, I just rest more and do my limbering-up exercises (tai-chi) to keep the joints moving and so far so good.

Hopefully in your case it's good news that they need an MRI as that suggests they are just looking for soft tissue damage and that can be controlled by anti-inflammatories, steroids and your dmards. If the inflammation can be controlled then that will delay any damage to the actual bones themselves.

Good luck with the MRI - remember to lie nice and still and relax - it doesn't hurt and they even play soothing music because it does take half an hour or so to complete the scan. (I fell asleep and woke with a start and they had to take it again because I made it blurred - whoops!!!)

Best wishes - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
BarbieGirl
#6 Posted : Thursday, November 01, 2012 8:40:52 PM Quote
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Joined: 12/3/2009
Posts: 1,110
Location: London
Thank you for the replies, it's so good to have so many kind people to help when its needed Smile ThumpUp

The MRI took quite a long time, 50 minutes, no idea what they were up to for that long!! It was freezing in there and their music machine wasn't working, so just the noise of the machine

I didn't manage to get my jabs on Saturday as I felt awful, knee was killing me, and I felt very nauseous
I changed my nurse appointment from this Tuesday to next week too. Hopefully by then the MRI results be will there Smile
BARBARA
jenni_b
#7 Posted : Sunday, November 04, 2012 2:02:42 PM Quote
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Posts: 2,237
Location: nr Southampton
Hi
I have had a few Mris and they are a much more detailed look in the leg and knee
They could see that the cruxiate ligament was missing and that the fluid was thickened etc
They did a debridement and synovectomy first on the left leg hoping that might help
Then did the MRI and it showed it was knackered

I've had my left knee replaced and its superb
The right knee is due for its replacement in the next couple of months
Actually I have the pre op the day before the doggies vist
how to be a velvet bulldoser
sylviax
#8 Posted : Sunday, November 04, 2012 4:52:32 PM Quote
Rank: Advanced Member


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Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Barbara - glad you've got the MRI done - it must've been a bit lonely all that time with no music or anything! It always takes ages, because the scan has to take such detailed pictures. Hopefully when you see the consultant they'll show you the actual scan - at our hospital it's on-screen and they can zoom in and move it around to show the back and front of the knee - it was a bit weird seeing the inside of my knee with lots of colours, but it's not gory - more like a cartoon!. Get your consultant to show the important bits - it all seems less frightening when you can start to see how it all fits together. Try not to worry - even though your knee is very painful it could just be inflammation, which can be controlled via drugs. And if you do need surgery there are lots of people on here who've had very successful ops and can give you loads of support

Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
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